Stronger Together.
A Network Built
on Shared Purpose.
FFF does not work alone. Our impact is multiplied by the partnerships, memberships, and networks that connect us to expertise, funding, and communities around the world — and by the advisors who guide our work.
Partners
Memberships
Affiliations
Council Members
The Organisations That Make Our Work Possible
FFF has built lasting partnerships with organisations that share our commitment to disability inclusion — connecting us with capacity, funding, expertise, and global advocacy networks that amplify the impact we can achieve in Nigeria.
Since 2009
Since 2013
Since 2013
Global Bodies FFF Belongs To
International Memberships
International Federation for Spina Bifida & Hydrocephalus (IFSBH)
IFSBH is the worldwide umbrella body for national and regional associations of people with Spina Bifida and Hydrocephalus. It leads the annual World SBH Day on 25th October every year. FFF became a member in 2013. In May 2016, FFF and IFSBH signed a partnership on the "No One Left Behind" project — ensuring children with SBH and their families have the skills needed for full societal participation, with emphasis on health and education rights.
GOs
Nigeria Network of NGOs (NNNGOs)
FFF is a member of the Nigeria Network of NGOs — the umbrella body for civil society organisations in Nigeria. This membership connects FFF to the wider NGO ecosystem in Nigeria, supporting advocacy, coordination, and accountability within the sector.
Networks & Affiliations
Pan African Networks of Persons with Psychosocial Disabilities (PANPPD)
FFF is a member of PANPPD — the continental network for persons with psychosocial disabilities, which co-implements the RIRE Project with FFF across Lagos State.
Hydrocephalus Association — International Community Network
FFF holds the distinction of being the first international community network of the USA-based Hydrocephalus Association, established in 2013 after attending the 12th National Conference in Maryland.
Global Health Partnerships (UK DHSC Programme)
FFF and Shine UK are implementing partners under the UK Department of Health & Social Care Global Health Workforce Programme, managed by Global Health Partnerships and Ducit Blue Solutions — funding the 2024 SLIF expansion across Nigeria.
International Disability Alliance (IDA)
Through the RIRE Project, FFF collaborates with IDA — the global network of organisations of persons with disabilities — ensuring FFF's advocacy is grounded in international disability rights standards.
Open Society Foundations (OSF)
OSF is the principal funder of the RIRE Project — which FFF implements in partnership with PANPPD to identify challenges facing People with Psychosocial Disabilities in Lagos post-COVID-19.
"No One Left Behind"
In May 2016, FFF and the International Federation for Spina Bifida & Hydrocephalus (IFSBH) signed a formal project partnership titled "No One Left Behind" — running until June 2019.
The project sought to ensure that children with Spina Bifida and Hydrocephalus (SBH) and their families have the skills and knowledge necessary for fully participating in society — with particular emphasis on the right to health and the right to education, in alignment with UNCRPD standards.
Right to Health
Ensuring SBH children and families have access to appropriate health services and clinical knowledge for self-management.
Right to Education
Supporting full inclusion of children with SBH in mainstream and inclusive schools — leaving no child excluded from learning.
Full Social Participation
Building the skills and confidence of children with SBH and their families to participate actively and fully in their communities.
FFF × IFSBH — Partnership
Signed May 2016 · Project ran until June 2019
Expert Advisors & Advocates
FFF's Advisory Council brings together professionals from medicine, law, technology, and community advocacy — providing expert guidance that strengthens our governance, strategy, and service delivery.
Sola is passionate about politics — but much more passionate about children's causes, especially as they concern medical emergencies and life-saving interventions. His background in digital media and technology brings a vital perspective to FFF's communications and outreach strategy.
He is married with children.
Her passion lies in empowering disadvantaged people. She mentors several people with physical, visual, and intellectual disabilities, and runs a free eye clinic for children with various disabilities. She is a trained Clinical Director of the Special Olympics Lions Club International Opening Eyes Program and has screened people with special needs for vision problems across Nigeria and internationally.
She has written and produced children's near charts and other vision therapy products including eye patches and workbooks.
Dr Nwokedi serves as National Vice President West of the Nigerian Optometric Association and Vice President of Women Optometrists in Nigeria.
Interests: Reading, writing short stories, movies, music, gardening, and travel.
Her legal background is particularly relevant to FFF's policy and advocacy work — supporting the organisation's engagement with legislation on disability rights, education, healthcare access, and non-profit governance in Nigeria.
Want to Partner
with Us?
FFF is always open to new partnerships with organisations, institutions, and individuals who share our mission of ensuring all persons with disabilities in Nigeria live with dignity, opportunity, and full inclusion.
Community Impact
Reach thousands of families, children, and caregivers living with Spina Bifida and Hydrocephalus across Nigeria.
Proven Track Record
Two decades of programme delivery, international accreditation, and a registered non-profit with full annual reporting and transparency.
Long-Term Partnerships
Our partnerships are built for the long term — Liliane Foundation has partnered with us since 2009, Shine UK since 2013.
Co-Design & Collaboration
We co-design projects with our partners — ensuring shared ownership, mutual capacity building, and sustainable outcomes.
Get in Touch
Reach out to the FFF team to discuss partnership opportunities, co-funding, capacity-building programmes, or any other form of collaboration.
Our Work Depends on Generous Support
Whether as a partner, donor, or volunteer — there are many ways to strengthen FFF's work and help more children and families living with Spina Bifida and Hydrocephalus in Nigeria.
Our Partners & Members
