Everything We Do
Is For the Child
Left Behind.
From life-saving surgery to inclusive classrooms, from folic acid awareness to continence care — FFF runs a comprehensive portfolio of programmes that give children with Spina Bifida and Hydrocephalus a real chance at life.
We Work Across the Full Spectrum of Need.
FFF's work is holistic. We don't just address one dimension of disability — we work across the full spectrum: from preventing neural tube defects before birth, to surgeries, to continence management, to inclusive education, to peer support, and to advocacy for policy change.
Every programme connects to every other. A child who receives surgery also needs continence care. A child in continence care needs to be in school. A child in school needs their family to feel supported. That is why FFF builds systems, not just services.
Prevention
Folic acid awareness before birth
Medical Access
Surgery & continence support
Inclusion
Education & social participation
Community
Peer support & counselling
A Comprehensive, Connected Approach
Prevention · Surgery · Education · Community
Service
Awareness & Advocacy
Annual Campaign
World SBH Day — 25 October
Every 25 October, FFF joins IFSBH and the global community to mark World Spina Bifida and Hydrocephalus Day — raising public awareness, reducing stigma, and advocating for government investment in SBH services across Nigeria.
Learn more →
Campaign
Go Folic! — Preventing Spina Bifida Before Birth
FFF's flagship Go Folic! campaign reaches women of childbearing age across Nigeria with life-saving information about folic acid supplementation — the single most effective prevention against neural tube defects like Spina Bifida.
Go Folic! Campaign →
Social Inclusion
Social Inclusion & Community Sensitisation
Beyond awareness campaigns, FFF works to shift deeply held cultural and spiritual beliefs that lead families to conceal or abandon children with Spina Bifida and Hydrocephalus — building community acceptance and inclusion.
Learn more →Targeted Interventions
That Change Lives
Inclusive Education Project
Working across 44 public inclusive schools in Lagos State — developing a Cooperative Teaching Manual and driving CWD enrolment.
View Project →
RIRE — Readdress Inclusion Rights & Empowerment
OSF-funded project to identify and address challenges facing People with Psychosocial Disabilities in Lagos post-COVID.
View Project →
Child Empowerment
Building futures for children with disabilities through skills development, therapy referrals, and community inclusion support.
View Project →Breaking All Barriers (BAB)
A flagship programme dedicated to removing every barrier — physical, social, and systemic — that prevents children with disabilities from full participation.
View Project →Free Eye Screening & Glasses
In partnership with Pro-Optics, FFF provides free eye screening and glasses to children with disabilities who cannot afford optometric care.
View Project →
Surgery Sponsorship for Indigent Children
Subject to donor funding availability
Medical Support — Opening Doors to Healing
FFF sponsors surgical procedures for indigent children with Spina Bifida and Hydrocephalus — the gateway to the full range of services they need to survive and thrive. Surgery opens the door. Without it, nothing else is possible.
All medical support is subject to funding availability. Families can apply through the FFF office, where a team assesses both clinical eligibility and financial need.
VP Shunt Surgery
Hydrocephalus shunt procedures to relieve dangerous brain pressure
Spinal Closure
Time-critical spinal defect closure to prevent infection and further damage
Hospital Referrals
Connecting families with specialist neurosurgeons across Nigeria
Support Groups & Counselling
Peer Support Groups
You are not alone. FFF brings together families affected by Spina Bifida and Hydrocephalus for peer support, shared learning, and community — reducing the devastating isolation that many families experience.
Benefits include information sharing, peer support, elimination of social isolation, coping skills, hope, and therapeutic value.
Lagos — LASUTH, Ikeja
Waiting Area behind Family Medicine block, Lagos State University Teaching Hospital
Ile-Ife — OAUTHC, Ile-Ife
Neurosurgery Clinic, Department of Surgery, Phase IV, Obafemi Awolowo University Teaching Hospitals Complex
Counselling & Referrals
FFF offers counselling to individuals with Spina Bifida and Hydrocephalus and their families from all parts of Nigeria. Since inception, the Foundation has provided these services for hundreds of families navigating a diagnosis.
We also signpost families to appropriate health institutions across the country where specialist treatment can be accessed — ensuring no family is left to navigate the system alone.
Individual & Family Counselling
Psychosocial support for newly diagnosed families and those managing long-term challenges of living with SBH
National Referral Network
Connecting families with specialist neurosurgeons, orthopaedic units, continence clinics, and rehabilitation services across Nigeria
Awareness That Changes What People Know
gofolic.org
FFF's dedicated Go Folic! awareness website — resources, facts, and campaign materials for health workers and communities.
Visit gofolic.org ↗Folic Acid & NTD Articles
A comprehensive library of health education articles — covering folic acid, neural tube defects, prevention, and treatment.
Read Articles →Student Corners
FFF's platform for students and young researchers to contribute perspectives on disability, health, and inclusion in Nigeria.
Student Corners →World Spina Bifida &
Hydrocephalus Day —
25 October
Every 25th October, FFF joins the International Federation for Spina Bifida & Hydrocephalus (IFSBH) and disability organisations worldwide to mark World SBH Day — the most significant date in the global SBH calendar.
FFF's annual SBH Day events bring together families, clinicians, policymakers, and communities for awareness, solidarity, and advocacy. It is a day to show that the SBH community in Nigeria is visible, valued, and fighting for its rights.
Two Decades of Measurable Change
Since 2006, FFF has been delivering programmes that reach thousands of children and families living with Spina Bifida and Hydrocephalus across Nigeria.
Power Every Programme
We Run.
None of what you've read on this page happens without donor support. FFF's programmes run entirely on the generosity of individuals, organisations, and partners who believe every child with Spina Bifida and Hydrocephalus deserves a real chance at life.
Trusted Partners & Members
