Breaking the Silence on
Spina Bifida & Hydrocephalus.
FFF organises seminars, symposiums, lectures, press conferences and annual road walks to raise public awareness and drive policy change for those living with SBH across Nigeria.
Turning Ignorance into Understanding.
Realising the high level of ignorance and the myths that surround Spina Bifida and Hydrocephalus, FFF organises annual seminars, symposiums, lectures, press conferences and road walks to raise awareness among the general public.
Our goal is to reduce the profound cultural and spiritual stigmas attached to these medical conditions — most especially in Sub-Saharan Africa — and to bring the plights of those living with SBH to the attention of government and relevant stakeholders.
Primary prevention is also a key pillar of our advocacy. FFF promotes the Go-Folic Awareness Campaign, educating women of childbearing age on the protective role of folic acid in preventing neural tube defects including Spina Bifida.
How We Raise Voices
FFF deploys a multi-channel approach to awareness — reaching the public, healthcare workers, policymakers, and media simultaneously.
Annual Charity Road Walk
Hundreds of participants — families, medical professionals, and allies — march together each year to make SBH visible in Lagos communities and beyond.
Seminars & Symposiums
Expert-led educational sessions equip healthcare workers, educators, and community leaders with accurate information about SBH diagnosis, management, and inclusion.
Press Conferences & Media
Regular press engagements keep SBH in the public eye, shifting narratives from stigma and superstition towards medical understanding and community support.
Government Advocacy
FFF engages legislators and ministry officials to advocate for favourable policies — healthcare access, disability rights legislation, and inclusive education funding — for SBH-affected Nigerians.
Go-Folic Campaign
FFF's primary prevention drive educates pregnant women and women of childbearing age on the critical importance of folic acid supplementation in preventing Spina Bifida.
Community Dialogues
Grassroots conversations in communities, churches, mosques, and markets address the cultural myths and spiritual misconceptions that drive families to hide and isolate children with SBH.
The Go-Folic Awareness Campaign
Spina Bifida is largely preventable. FFF's Go-Folic Campaign promotes daily folic acid supplementation before and during early pregnancy as the single most effective preventive measure against neural tube defects.
The campaign reaches women through hospitals, community health workers, schools, and FFF's partner networks across Nigeria — delivering life-saving information in the most direct way possible.
with folic acid
folic acid dose
across Nigeria
prevention advocacy
Annual Charity Awareness Walk
Every year FFF takes to the streets of Lagos — bringing families, volunteers, medical professionals, and supporters together in a powerful, colourful demonstration for SBH visibility and rights.
How We Drive Policy Change
Awareness alone is not enough. FFF's advocacy work directly targets the systems, policies, and decision-makers that shape the lives of Nigerians with SBH.
Community Sensitisation
Grassroots education programmes counter myths and stigma in local communities, schools, and religious settings — changing hearts before changing laws.
Media Engagement
Press conferences, radio appearances, and social media campaigns bring SBH stories to national audiences and create sustained public pressure for policy action.
Stakeholder Advocacy
FFF engages government ministries, the National Assembly, and international bodies to advocate for disability-inclusive health and education policies.
International Linkage
Through global partnerships with FSBH International, SHINE UK, and Liliane Foundation, FFF connects Nigerian SBH advocacy to international best practice and resources.
Research & Documentation
FFF produces reports, assessments, and documentation that provide evidence for advocacy — ensuring our campaigns are grounded in data and lived experience.
Help Us Keep Raising Awareness.
FFF's awareness and advocacy work depends entirely on the generosity of donors. Your contribution funds road walks, educational campaigns, press events, and government advocacy for SBH-affected Nigerians.
- Funds the annual charity awareness road walk
- Supports Go-Folic prevention campaigns
- Enables media and press engagement
- Powers policy advocacy with government
- 100% of donations go directly to programmes
- Registered non-profit: CAC/IT/No. 24051
Trusted Partners & Members
