About Us — Festus Fajemilo Foundation
Founded 2006 · Lagos, Nigeria · CAC/IT/NO. 24051

Born from Love.
Built on Hope & Inclusion.

What began as one family's desperate search to save a baby's life has grown into Nigeria's leading champion for the rights and dignity of every person living with Spina Bifida and Hydrocephalus.

2004
Festus Born
2008
Parents Group Founded
2006
FFF Incorporated
3,000+
Lives Impacted
Mr. Fajemilo Fajemilo, Founder & Executive Director
FFF community event
19+
Years of
Service
Registered Non-Profit CAC/IT/NO. 24051
FFF TRAJECTORY
"
The discovery of several other children with similar impairments prompted Festus parents to initiate a self-funded Parents Support Group — and from that, a foundation was born.
""
FFF awareness programme
FFF Services in Action Reaching families across Lagos State and beyond since 2006

One Baby. One Family. A Movement.

Festus Fajemilo Foundation started as an initiative towards a very passionate drive to save the life of the then baby Festus — born in the year 2004 to Mr. and Mrs. Fajemilo and diagnosed to have hydrocephalus with no access to treatment and support.

The discovery of several other children with similar impairments prompted Festus' parents to initiate a self-funded Parents Support Group in 2008, which evolved into the incorporation of FFF as a formal not-for-profit disability-focused organisation.

As the Foundation identified, engaged, and provided support to more children with Spina Bifida and Hydrocephalus (SBH) and their families in Lagos State and beyond, the need to strengthen the human and institutional capacity of the Foundation became more imminent.

The demand for more advocacy, raising of public awareness, capacity-building of stakeholders, and provision of support services to children and their families required more financial, human, material, and technical resources — which could only be achieved through the strategic repositioning of the Foundation to become a trusted leading champion for advocacy and support service provision for children and adults with SBH in Nigeria and beyond.

Mr. Afolabi Fajemilo
Our Founder

The couple Behind the Mission

Mr & Mrs Afolabi Fajemilo
Founder & Executive Director · Festus Fajemilo Foundation

Mr. Afolabi Fajemilo and his wife transformed the most painful period of their lives — the search for treatment for their son Festus — into a gift for thousands of other Nigerian families navigating the same impossible road.

Their decision to channel private grief into public action, beginning with a self-funded parents support group in 2008, is the foundation upon which everything FFF has built now rests. Under thier leadership, FFF has become one of Nigeria's most respected disability-focused organisations.

"No one living with a disability in Nigeria should face their challenges alone. We exist to walk with them — every step of the way."

What Drives Us

Mission, Vision & Core Commitments

Every decision, programme, and partnership at FFF is guided by a clear sense of purpose — shaped by years of listening to the families we serve.

01

Our Mission

FFF is strongly committed to providing accurate strategic information on SBH and other types of disabilities for the purpose of raising public awareness and enlightenment.

02

Our Vision

A Nigeria where People with SBH and other forms of disabilities enjoy equal rights and live a fulfilled and productive life without any form of abuse, discrimination, and exclusion.

03

Our Commitment

We commit to serving our beneficiaries with compassion, integrity, and excellence — ensuring that every naira donated, every volunteer hour given, and every partnership forged translates into real, lasting change for real people across Nigeria.

Core Values

🤝 Inclusion
⚖️ Dignity & Rights
💙 Compassion
🌱 Empowerment
🔬 Excellence
🌍 Collaboration
📊 Accountability
Our Journey

19+ Years of Building Inclusion

From a father and mother's desperate search for help, to a trusted national organisation serving thousands — the FFF story is one of love, determination, and unstoppable purpose.

2004
Baby Festus The Beginning

Baby Festus was Born

Mr. Afolabi and Mrs. Adewumi Fajemilo's son Festus was born and diagnosed with hydrocephalus at 2 months old. Facing no access to treatment or support in Nigeria, the family began a journey that changed thousands of lives.

2006
Foundation

Festus Fajemilo Foundation Incorporated

The vision about the foundation was concieved and FFF became the pioneer charity of Spina bifida and hydrocephalus to public awareness

2007
FFF The launch

Festus Fajemilo Foundation Launched & Incorporated

FFF was launched and formally registered in Lagos, Nigeria (CAC/IT/NO.24051) as a disability-focused not-for- profit beginning community awareness events and direct family outreach across Lagos State and its environ.

2008
Commenced

Self-Funded Parents Support Group Launched

Recognising that many other families faced the same isolation, Mr. and Mrs. Fajemilo initiate a self-funded Parents Support Group — the immediate precursor to the formal Foundation and a testament to community-driven action.

2009
Programmes

Child Development & Enabling Environment Programme

FFF launches its long-running Child Development programme, beginning systematic empowerment work for children with disabilities with the first grant funding from Lilane Foundation - Netherlands

2012 - 2013
FFF Connects

FFF Connected with International Partners

FFF became 1st International Community Network member of Hydrocephalus Association in United States of America in 2012 and in the same year joined the global umbrella body for national associations of people with spina bifida and hydrocephalus – International Federation for Spina Bifida and Hydrocephalus to celebrate the 1st World Spina bifida and Hydrocephalus Day using global awareness to influence local impact. In 2013 FFF and Shine UK met, when the Co-founder of FFF (Afolabi Fajemilo) attended Shine’s annual general meeting while in the same year, FFF became a member of International Federation for Spina bifida and Hydrocephalus thus bringing international expertise, solidarity, and resources to Nigerian families with SBH for the first time.

2015 - 2016
Milestone

Saving Lives! Improving Futures (SLIF) Continence Management project

Following meeting Shine UK in 2013, the latter played a host to three FFF staff on a Commonwealth Fellowship Programme to offer support in relation to governance, campaigns and fundraising in 2015. The period provide the opportunity on how Shine and FFF could support each other for which continence care for people with spina bifida was recognized as one area in Nigeria where good quality care was sorely lacking. In 2016, The SLIF project was launched to address the complex and often severe bowel and bladder issues common amongst babies, children and adults with spina bifida. The project has grown to support 11 public teaching hospitals as of 2025 to improve the quality of lives of more than 300 babies, children and young adults with spina bifida in 5 of the 6 regions of Nigeria. The project is still growing to reach much more.

2019
Education

Inclusive Education Project Launched

FFF begins its partnership with Liliane Foundation Netherlands to improve inclusive education across all 44 public inclusive schools in Lagos State through the cooperative teaching model.

2020
Wellbeing

RIRE Mental Health Initiative

Recognising the psychological toll of living with disability, FFF launches RIRE — a dedicated mental health project to promote inclusion and participation of people with psychosocial disability in Nigeria.

Covid-19 E-Learning Support to Lagos State Government

FFF in Partnership with Lagos State JONAPWD and Daughters of Charity of St. Vince De Paul launched Covid-19 E-Learning support to Lagos State government to ensure children with disabilities were not left behind soon as the State government commenced its E-Learning program during Covid-19 lockdown periods. FFF and its partners mobilized teachers across the 44 public inclusive schools in Lagos State for a period of 10 weeks to encourage parents to support their disabled children to connect to various digital learning platforms of the state government, provided sign language interpreters and developed adapted learning content for children with hearing and Intellectual disabilities. FFF ended with production of documentary that was adopted by Campaign for Inclusive Education United States as a model for providing education for children with disabilities during disaster and emergency situation.

2023
SALI

Save-A-Life Initiative Launched

SALI provides critical needed surgical funding for children with SBH whose families cannot afford life-saving treatment — directly intervening to save hundreds of lives across Nigeria. The Foundation has from August 2023 supported 80 children and 88 surgeries till date and continuing……..

Now
Present Day

3,000+ Lives Impacted — Strategic Repositioning Underway

FFF has directly impacted over 3,000 Nigerians living with disability. The Foundation now embarks on its strategic plan — redefining its vision, expanding geographically, and strengthening capacity to mobilise all needed resources for sustained development and impact.

3,000+
Lives Impacted
19+
Years of Service
12+
Active Programmes
5
Global Partners
36
States Reached
Our People

The Team Behind Every Impact

From our Board of Trustees to our programme officers and field volunteers — every member of the FFF family plays a vital role in advancing our mission across Nigeria – Here needs to be re-written. For instance, you put Mr. & Mrs. Afolabi Fajemilo with my picture only. Management Team – Executive Director, Project Officer, Account Officer, Communication (Volunteer)

Afolabi Fajemilo
Mr & Mrs Afolabi Fajemilo
Founder & Executive Director
Disability rights activist and social entrepreneur with over 18 years leading FFF's mission across Nigeria and beyond.
Programme Director
Programmes & Operations
Oversees FFF's medical support, SALI, and community outreach programmes, ensuring quality delivery across all initiatives.
Advocacy Lead
Policy & Advocacy
Drives FFF's engagement with government bodies, international partners, and media to advance disability rights legislation.
Medical Coordinator
Health Programmes
Coordinates FFF's network of volunteer healthcare professionals and manages clinical partnerships and surgical referrals.
Join Our Mission

Together We Can Make Every Life Flourish.

Whether you donate, volunteer your skills, or spread awareness — your contribution becomes part of a larger story of dignity and inclusion for thousands of Nigerians living with disability.

Trusted Partners & Members

TLMN
FSBH International
Hydrocephalus Association
Liliane Foundation
SHINE Charity UK
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