Partners, Networks & Advisory Council — Festus Fajemilo Foundation
FFF Partners
Partnerships · Memberships · Networks · Advisors

Stronger Together.
A Network Built
on Shared Purpose.

FFF does not work alone. Our impact is multiplied by the partnerships, memberships, and networks that connect us to expertise, funding, and communities around the world.

2
Strategic
Partners
4
Global
Memberships
2
Networks &
Affiliations
Liliane Foundation
Liliane Foundation
FFF Partnerships
FFF Partnerships
Shine UK
Shine UK

The Organisations That Make Our Work Possible

FFF has built lasting partnerships with organisations that share our commitment to disability inclusion — connecting us with capacity, funding, expertise, and global advocacy networks that amplify the impact we can achieve in Nigeria.

Liliane Foundation Since 2009
Principal Partner
The Leprosy Mission / Liliane Foundation
The Netherlands
LF is an international organisation that supports children and young people with disabilities in developing countries. The partnership with FFF dates to 2009 — one of our longest and most impactful alliances. LF provides annual grants for direct support to FFF's target children in a holistic way that leads to empowerment and creates enabling environments. LF also supports capacity strengthening of FFF staff to ensure quality service delivery. In August 2016, LF and MIVA Men donated a 15-seater bus to FFF to support improved service delivery.
Annual Grants Holistic Support Capacity Building Bus Donation 2016
Shine UK Since 2013
Strategic Partner
Spina Bifida Hydrocephalus Information Networking Equality (Shine)
United Kingdom
Shine is the national charity for people living with Spina Bifida and Hydrocephalus in England, Wales, and Northern Ireland. Links with FFF were established in 2013 when co-founder Afolabi Fajemilo attended Shine's AGM. In 2015, Shine hosted three FFF staff on the Commonwealth Fellowship Programme — providing capacity building in NGO governance, health campaigns, support groups, and fundraising. A key outcome was the landmark SLIF Continence Management Project partnership, now reaching 9 hospitals across Nigeria and funded by UK DHSC.
SLIF Project Continence Management Commonwealth Fellowship DHSC UK
View SLIF Project →
Hydrocephalus Association USA Since 2013
Community Network Partner
Hydrocephalus Association
Maryland, USA
After attending the 12th National Conference on Hydrocephalus in Maryland, USA, FFF became the first international community network of the Hydrocephalus Association (HA) in 2013. Since then, HA has been actively supporting FFF's support group activities — connecting Nigeria's Hydrocephalus community with the global network of researchers, clinicians, and families working to improve outcomes for people living with Hydrocephalus.
Support Groups First International Network Community
About Hydrocephalus →

Liliane Foundation & MIVA Donate a 15-Seater Bus — August 2016

In recognition of the partnership and to support FFF's growing programme delivery across Lagos State, Liliane Foundation in conjunction with MIVA Men donated a fully equipped 15-seater bus to FFF in August 2016 — enabling better outreach and service delivery for children with Spina Bifida and Hydrocephalus.

15-Seat Bus
August 2016
Liliane Foundation

Global Bodies FFF Belongs To

Get in Touch →

International Memberships

International Federation for Spina Bifida & Hydrocephalus (IFSBH)

🇧🇪 Belgium · Member since 2013

IFSBH is the worldwide umbrella body for national and regional associations of people with Spina Bifida and Hydrocephalus. It leads the annual World SBH Day on 25th October every year. FFF became a member in 2013. In May 2016, FFF and IFSBH signed a partnership on the "No One Left Behind" project — ensuring children with SBH and their families have the skills needed for full societal participation, with emphasis on health and education rights.

Nigeria Network of NGOs (NNNGOs)

🇳🇬 Nigeria · National Membership

FFF is a member of the Nigeria Network of NGOs — the umbrella body for civil society organisations in Nigeria. This membership connects FFF to the wider NGO ecosystem in Nigeria, supporting advocacy, coordination, and accountability within the sector.

Networks & Affiliations

Pan African Networks of Persons with Psychosocial Disabilities (PANPPD)

FFF is a member of PANPPD — the continental network for persons with psychosocial disabilities, which co-implements the RIRE Project with FFF across Lagos State.

Hydrocephalus Association — International Community Network

FFF holds the distinction of being the first international community network of the USA-based Hydrocephalus Association, established in 2013 after attending the 12th National Conference in Maryland.

"No One Left Behind"

In May 2016, FFF and the International Federation for Spina Bifida & Hydrocephalus (IFSBH) signed a formal project partnership titled "No One Left Behind" — running until June 2019.

The project sought to ensure that children with Spina Bifida and Hydrocephalus (SBH) and their families have the skills and knowledge necessary for fully participating in society — with particular emphasis on the right to health and the right to education, in alignment with UNCRPD standards.

Right to Health

Ensuring SBH children and families have access to appropriate health services and clinical knowledge for self-management.

Right to Education

Supporting full inclusion of children with SBH in mainstream and inclusive schools — leaving no child excluded from learning.

Full Social Participation

Building the skills and confidence of children with SBH and their families to participate actively and fully in their communities.

No One Left Behind

FFF × IFSBH — Partnership

Signed May 2016 · Project ran until June 2019

2016
Partnership signed
3 Yrs
Project duration
UNCRPD
Rights alignment

Want to Partner
with Us?

FFF is always open to new partnerships with organisations, institutions, and individuals who share our mission of ensuring all persons with disabilities in Nigeria live with dignity, opportunity, and full inclusion.

Community Impact

Reach thousands of families, children, and caregivers living with Spina Bifida and Hydrocephalus across Nigeria.

Proven Track Record

Two decades of programme delivery, international accreditation, and a registered non-profit with full annual reporting and transparency.

Long-Term Partnerships

Our partnerships are built for the long term — Liliane Foundation has partnered with us since 2009, Shine UK since 2013.

Co-Design & Collaboration

We co-design projects with our partners — ensuring shared ownership, mutual capacity building, and sustainable outcomes.

Get in Touch

Reach out to the FFF team to discuss partnership opportunities, co-funding, capacity-building programmes, or any other form of collaboration.

Address
Lagos, Nigeria
Email
info@fesfaj-foundation.org
Website
www.fesfaj-foundation.org
Registration
CAC/IT/NO. 24051

Our Partners & Members

TLMN Network
FSBH International
Hydrocephalus Association
Liliane Foundation
SHINE Charity UK
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