You Are Not
Alone.
FFF provides localised support, education, and empowerment by bringing together people affected by Spina Bifida & Hydrocephalus and their families.
A Community Built on Shared Understanding.
Living with Spina Bifida or Hydrocephalus — or caring for someone who does — can feel isolating. FFF's Support Group exists to change that. It is a safe, welcoming space where affected individuals and their families come together, share experiences, and find strength in one another.
Through regular meetings at hospital venues in Lagos and Ile-Ife, FFF fosters a community of unconditional acceptance, practical knowledge, and genuine hope.
The Benefits of Being Together
The support group offers far more than a meeting. It is a source of knowledge, courage, and connection for every family that walks through the door.
Peer Support
Connect with others who truly understand. Share your journey, listen to theirs, and find mutual encouragement among members who walk the same path.
Shared Knowledge
Access information, ideas, resources, and lived experience that leads to deeper understanding of SBH conditions — information that is hard to find elsewhere.
Unconditional Acceptance
Leave behind the fear of judgment. Our group offers a space of full acceptance — where every family, every child, and every struggle is welcomed without condition.
Coping Skills
Learn and reinforce practical coping strategies from facilitators and fellow members — building resilience for the everyday challenges of living with SBH.
Hope & Inspiration
Develop hope by hearing from members who are thriving — living well with SBH. Their journeys show what is possible and remind every family that a better life is within reach.
Therapeutic Value
Simply being heard and understood has profound therapeutic power. Our meetings create space for emotional healing through story-sharing, prayer, and communal care.
Where We Meet
FFF support group meetings are held at two hospital venues in Lagos and Ile-Ife. All meetings are free and open to affected individuals, carers, and family members.
Lagos State University Teaching Hospital
Waiting Area behind Family Medicine Block
LASUTH, Ikeja, Lagos
Obafemi Awolowo University Teaching Hospital
Neurosurgery Clinic (SOP), Department of Surgery, Phase IV
OAUTHC, Ile-Ife, Osun State
Joins us today! Share & feel loved.
Contact Us to Attend →How a Support Group Session Works
Every meeting is a structured yet warm gathering — designed to make newcomers feel welcome and regulars feel at home.
Welcome & Introductions
Every session opens with a warm welcome. New members are introduced and every attendee — family member or patient — is made to feel they belong.
Health Education
A medical professional or FFF facilitator shares practical information about managing Spina Bifida and Hydrocephalus — from treatments to daily care routines.
Open Sharing
Members share personal stories, challenges, and victories. This is the heart of the meeting — where real connection happens and hope is exchanged.
Q&A & Referrals
Attendees ask questions, seek guidance, and are connected to appropriate medical or social support services where needed.
Community Closing
Each session closes with encouragement, upcoming announcements, and a reminder that every family is part of a community that never leaves them behind.
Part of a Worldwide SBH Community
FFF's support group is connected to a broader international network of Spina Bifida and Hydrocephalus organisations. You are joining a global family — one committed to ensuring no one faces these conditions alone.
View Community Network →Help Keep Our Community Alive.
The FFF Support Group relies on the generosity of donors to continue bringing families together. Your gift helps cover meeting facilitation, health education sessions, and outreach to new families.
- Funds meeting facilitation and health education
- Helps reach newly diagnosed families across Nigeria
- Supports referrals to medical and social services
- 100% of donations go directly to programmes
- Registered non-profit: CAC/IT/No. 24051
Trusted Partners & Members
